Projects

Amplifying Lived Experience of Supplemental Benefits

How can we learn more about the value of Medicare Advantage nonmedical benefits from the people who interact most with them, so we can inform policy decisions about these benefits?

Partners & Funders

The Project

Critical data gaps exist around Medicare Advantage nonmedical benefits, and much of the existing evidence does not include accounts of people’s lived experiences. PPL collected first-hand stories from older Americans receiving these benefits to contribute to a larger body of knowledge about them.

The Outcome

Through human-centered research with older Americans, we developed a set of research findings about their awareness of nonmedical benefits and their experiences of choosing and receiving them. These findings were incorporated with more data collected by ATI Advisory, a research and consulting firm, in partnership with The SCAN Foundation to craft a publicly released report.

Amplifying Lived Experience of Supplemental Benefits

How can we learn more about the value of Medicare Advantage nonmedical benefits from the people who interact most with them, so we can inform policy decisions about these benefits?

Partners & Funders

The Project

Critical data gaps exist around Medicare Advantage nonmedical benefits, and much of the existing evidence does not include accounts of people’s lived experiences. PPL collected first-hand stories from older Americans receiving these benefits to contribute to a larger body of knowledge about them.

The Outcome

Through human-centered research with older Americans, we developed a set of research findings about their awareness of nonmedical benefits and their experiences of choosing and receiving them. These findings were incorporated with more data collected by ATI Advisory, a research and consulting firm, in partnership with The SCAN Foundation to craft a publicly released report.

Project Background

Since 2019, The SCAN Foundation (TSF) has funded critical bodies of work to advance understanding of nonmedical Medicare Advantage (MA) benefits to support health-related social needs (HRSNs). This includes a resource center that has become the go-to source for information nationwide, providing easy access to data and insights on benefits, implementation ‘roadmaps,’ and policy recommendations.

Several years into implementation, critical data gaps existed on whether and how nonmedical benefits reach and/or provide value to consumers. PPL helped close these gaps by conducting human-centered design research with older Americans about their experiences receiving Medicare Advantage nonmedical benefits. 

This project presented our first opportunity to leverage the research participant pool of older Americans we had previously generated in the development of The People Say, the public, qualitative research database created in partnership with The SCAN Foundation. Conducting follow-on interviews with members of that participant pool and adding new participants to the pool, we worked to build an evidence base on the value of nonmedical benefits, focusing particularly on TSF’s priority populations of BIPOC, rural, and low-income older adults. Leveraging The People Say in this way begins to fulfill PPL and TSF’s larger goal of developing longitudinal research with older adults nationwide. And the findings we generated with this work support a more balanced review and discourse on benefits extending beyond traditional healthcare coverage among policymakers, industry experts, and consumer advocates.

The SCAN Foundation and ATI Advisory are using our findings, alongside additional research, to inform advocacy for new Medicare coverage and care delivery reforms aligned with the needs and preferences of TSF’s priority populations.

In addition to delivering our findings to ATI and TSF, we also incorporated them into The People Say, adding data from this second, more focused interview to the existing data sets of multiple research participants. This research was also featured in an article from Health Affairs, Elevating Beneficiary Perspectives On The Promise And Pitfalls of Medicare Advantage Supplemental Benefits.

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Data Points

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Beneficiary Interviews

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Tagged Topics

What We Found

We conducted ten qualitative interviews with Medicare Advantage (MA) enrollees receiving non-medical supplemental benefits in Pennsylvania, Texas, and Alabama. Five of these research participants were re-recruited from the People Say participant pool, and five additional participants were selected for their geographic proximity to the first five and their enrollment in MA plans offering them non-medical supplemental benefits.

We focused on four primary inquiry areas:

  • In what ways do supplemental benefits support the needs of beneficiaries?
  • How do beneficiaries make decisions about selecting a health insurance plan?
  • What are beneficiaries’ uses and experiences of nonmedical benefits?
  • How do beneficiaries perceive the value of nonmedical benefits?

Themes
While we did not undertake synthesis for the data we collected, we did observe some themes in reviewing the data. 

Awareness and Information Needs

  • Few of our ten participants were aware of the existence of non-medical supplemental benefits when choosing their plan or aware that they would receive them—in some cases, these benefits rolled out well after enrollment. Nonetheless, all beneficiaries appreciated their supplemental benefits.
  • Beneficiaries generally became aware of their supplemental benefits through a letter or phone call after they enrolled in their plan. But much of their knowledge of how to use the benefits seems informal, anecdotal, informed by friends, and sometimes incomplete. Many did not know the range of potential locations they could spend money from a benefit card or have a clear list of what they can or can’t buy with it. 
  • Beneficiaries are not always aware of why they are eligible for their supplemental benefits—some, but not all, understand that chronic illness or income make them eligible.
  • No participants currently use a transportation benefit to access non-medical destinations, but some think it might be possible, and if they were more certain, they would be likely to make use of those benefits.

Challenges and Desired Changes

  • Some beneficiaries have experienced initial challenges using their benefit cards to buy groceries related to incomplete understanding of how to use the cards, but they have resolved these challenges.
  • Some beneficiaries have struggled to pay utility bills using their benefit cards and have not received competent support from their insurers in troubleshooting those challenges.
  • Several beneficiaries noted they would prefer that their benefits rolled over month to month to offer them more spending flexibility.
  • Several beneficiaries expressed confusion about why different supplemental benefits are loaded onto different cards (one beneficiary had a plan card that carried her OTC benefits, a debit card that carried her grocery and utility benefits, and a gas card that she received quarterly). The variety of cards has led to some challenge when trying to make use of each benefit.
  • Those who have flexibility in how to allocate benefits across groceries, utilities, rent, OTC, and other needs appreciate it. Those who do not have that flexibility desire it.
  • Beneficiaries were generally satisfied by the amount of their grocery stipend, especially given that they didn’t expect this benefit at the outset, but almost all noted they would be happy for the amount of their grocery stipend to increase as well.

Value

  • Beneficiaries generally assess the value for supplemental benefits based on their immediate needs.
  • Beneficiaries feel grocery benefits are helpful because they allow for less reliance on food banks and SNAP and help to reduce financial burden on family caregivers. 
  • Beneficiaries appreciate benefits that enable them to pay their utility bills (though no one was receiving enough money to meaningfully contribute to their rent).
  • While many beneficiaries do not currently make use of transportation benefits offered by their plans, all could see the value of those benefits and could forecast the need for them, especially transportation to medical appointments. None had considered the possibility that an insurance-provided service might transport them to non-medical locations, but around half expressed desire for such a service and believed it would meaningfully impact them. 
  • Among potential supplemental benefits, beneficiaries appreciate the stipend for groceries and utilities because it does the most to offset their monthly expenses, but they also see great (in some cases, greater) value in in-person support for cleaning, self-care, and social support—one who had this service wanted more, and others could see its future value.

What We Implemented

We incorporated the filmed data from beneficiary interviews into The People Say, tagged to “Study 2: Aug 2024 – Sept 2024,” alongside a variety of other topics and subtopics. We also developed a set of themes from research and produced key findings and participant profiles for each beneficiary participant.

Alongside PPL’s research, TSF and ATI conducted interviews with former and current state officials, information aggregators (e.g., State Health Insurance Assistance Program counselors, health plan brokers), home and community-based service (HCBS) providers, and caregivers to gain a deeper understanding of Medicare benefits most likely to enable consumers to continue to live in both their home and community. 

With the findings of these various interviews, TSF and ATI are supporting ongoing coverage and dialogue among policymakers, industry experts, and consumer advocates to inform new Medicare coverage and care delivery reforms that reflect the needs and preferences of TSF’s priority populations.

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